Wil had a very hard morning. He would not get out of bed. Would not budge. Usually I tickle his feet. He laughs, sits up and says, “Hug Mom!” He loves high school so even if he’s tired he is typically happy to get up and go. This morning was a throw back from the … Continue reading With a little help from my friends
Inclusion
I am enmeshed in the world of people helping people; of making inclusion work. Personally and professionally. I am on a high learning curve, always, with both Wil and the children I work with. Down syndrome looks much different than other disabilities, and of course, no matter the disability, each individual is their very own … Continue reading Inclusion
Blooming Naturally
Opening minds to acceptance need not be negative. My journey with Wil’s diagnosis is likened to a flower blossoming through a crack in the concrete, unfolding, stretching, growing, reaching, and opening fully to the sun. At first unbelievable, then freeing, and now a natural part of life. Disability is a natural part of the human … Continue reading Blooming Naturally
My Writing Summed Up in 7 Steps
If I were to sum up my writing surrounding Wil in 7 steps it would be: Wil wants and deserves to be treated as you’d treat anyone. As the individual he is. But, 47 chromosomes has an impact on Wil. To respect him for who he is, you cannot have an idealized view of what … Continue reading My Writing Summed Up in 7 Steps
To Be or Not To Be
Individuals with disabilities are not more or less special — they are not put on this planet to teach us. All of us are born of the same place; all of us are born of our own ways. All of us are here just as we all are—meant to live and breathe and express our … Continue reading To Be or Not To Be
The Flip-Side
“It’s hard raising a child with disabilities.” If I had a quarter for every time I heard or read that statement. Bear with me while I flip the coin for a moment. No story is ever one-sided. When I watched Wil walk off to his cabin for his first overnight camp, without even a glance … Continue reading The Flip-Side
An Ode to Laughter
To the moms who supported me in those early years and beyond… Instead of sighing, we laughed.Instead of crying, we laughed.Instead of our differences, we laughed.Laughter did not make light of.Laughter did not negate the challenge of.Instead, laughter is depth of connection.Instead, laughter is inner understanding.Instead, laughter is unity.Instead, laughter is fortitude to navigate the … Continue reading An Ode to Laughter
Tree Wil and Glitter Christie
The past fall, I struggled with the thought of never truly being an empty nester. My thoughts were a twisted, tangled jumble of yarn – strands of prickly burlap wound tight around strands of brilliant, transparent glitter. The brilliant strands of glitter represent Wil’s near constant song. Nearly every event calls for a song -- … Continue reading Tree Wil and Glitter Christie
Take Another Think
We may believe our thinking is correct; or it is good—that we are good people. Even those of us that call ourselves open-minded may find we have unwittingly closed off our minds when spending time with individuals with disabilities. Why is this? Because we have to see it their way first to understand. And many … Continue reading Take Another Think
To “Be” or not to “Be”
At 53 years old I am a student. At 89 years old I will be a student. When I say goodbye to this world, I will be a student. Yesterday, I was trying to help a student who has autism. I was kind. I gave this student squeezes, I spoke calmly; soothingly. This student's aggravation … Continue reading To “Be” or not to “Be”