Community is everything. đź’™ Wil enjoying the music and festivities at a Buddy Walk past. To celebrate Wil’s 20th Buddy Walk, I penned an article for the Manchester Mirror all about the power of showing up, local love, and the amazing people who make it all possible. We are endlessly grateful for the support right … Continue reading Miles of Memories: Marking Two Decades of Community
Love the not-so-normal norm
Do you want me to tell you it’s all sunshine and rainbows? It’s not—but there is a lot of that. I really don’t think you can enjoy the full extent of the sunshine without the rain, though. And can you really see all the colors of the rainbow without a cloudy backdrop? I’m writing this, … Continue reading Love the not-so-normal norm
Spaces That Last
A farm where Wil has worked over the last few summers recently closed its doors. It was a space specifically created for people with disabilities—a true project of passion and heart started by a founder who has an adult daughter with a disability. In the end, he simply couldn’t keep up with the funding.My heart … Continue reading Spaces That Last
Creating Space & Saving Spoons
I was just kinda wondering about a few things. Like, why do we get burned out? Why on some days do I love my son’s stuttering. It’s really not even stuttering, it’s halting, starting a word, bringing it back in and reforming it. Then it all tumbles out until the next words get backed up … Continue reading Creating Space & Saving Spoons
Paradoxical Path
A singular new word Wil calmly adds to his vocabulary, in a such a way that only I — or his closest educators — would hear stands out like a stacatto flashing me back in time to a movie reel loop when he was 5 or 7 or 10, working a skill on a repeat … Continue reading Paradoxical Path
The Bright Side
Elizabeth sent me this picture of her and her sorority sister, Isabelle. They were visiting a cider mill and enjoying the day with their sisters. I love to see her big heart and smile, and loving life on her own. She has more than earned this time. She and her twin sister, Katherine, are great … Continue reading The Bright Side
Patience v Desire to Understand
I’m not a patient person. But I’ve been called patient a lot since raising Wil. And I started to believe I grew in my patience. It’s possible I did. Last weekend Wil got stuck, and we had a very important wedding to get to. As the clock ticked I grew very frustrated. I wasn’t feeling … Continue reading Patience v Desire to Understand
Stages of Independence
I sat in my seat as Wil walked up on stage to receive his school honors. He needed no support or assistance. He, like his peers, walked from his seat to the stage and back to his seat. As he returned to his seat, I waved so he could find me, but he didn’t need … Continue reading Stages of Independence
Whale Starts with W
“I swallowed a marble.” I was in the living room. Wil was sitting in his bedroom adjacent to the living room. Wil often talks to himself – many of us do. It helps us better process our thoughts, and it’s the same for Wil and for many people with Down syndrome. I quite like eavesdropping … Continue reading Whale Starts with W
Disability Invisibility Goggles
We historically do not like people who think differently than we do. We want things to work out the way we want them to and we surround ourselves the best way we can so things work out the way we want them to. When things don’t work out the way we want them to we … Continue reading Disability Invisibility Goggles