At school yesterday, we wore our silly socks for World Down Syndrome Day. Today is actually WDSD, but since there isn’t school on Saturday, we celebrated on Friday. As the other teacher assistants and I walked down the hall to pick up our students from the bus, we talked about our socks. I said that, … Continue reading What Silly Socks Don’t Tell You
Down Right Perfect
I remember one day wearing a “Down Right Perfect” t-shirt as I marched up to the high school doors to collect Wil after school hours because he had run from getting on the bus. He booked it up the steps to the second floor and hid. Once he was found, Mr. Walsh walked him down … Continue reading Down Right Perfect
Paradoxical Path
A singular new word Wil calmly adds to his vocabulary, in a such a way that only I — or his closest educators — would hear stands out like a stacatto flashing me back in time to a movie reel loop when he was 5 or 7 or 10, working a skill on a repeat … Continue reading Paradoxical Path
Wil is graduating; this is a hard one. Raising Wil I’ve gone through what I think of as “3 acceptances” so far: Acceptance of Ds Acceptance of new behaviors of puberty. (That was a tough one!! That truly took a village!) Acceptance of transitioning out of high school. Wil is ready to graduate, though; he’s … Continue reading
Wepa!
Wil has a very set — and happy — routine in the morning. His alarm goes off, I go to his room, sing him a song and give him a hug (definitely a daily stop and smell the roses moment for me — making time for songs and hugs are Wil’s priorities and remind me … Continue reading Wepa!
It’s a Wonder
I think all of us look at our seniors in wonder. Because when they are born, that’s all we can do; we can never quite know how the future will unfold. I still wonder as I look back on how he — and we all — got here. I cannot fully express my gratitude for … Continue reading It’s a Wonder
Lightweight Powerhouse
This morning I lifted arms, and was in between weight choices — one was a little too heavy and one a little too light. I chose the lighter weight today. I really focused on contracting my muscle and slowing down. Veins and muscles popped with the lighter weight as I was super focused on form. … Continue reading Lightweight Powerhouse
Wil rode is bike to school!
https://videopress.com/v/hezs5Vyj?resizeToParent=true&cover=true&preloadContent=metadata&useAverageColor=true Wil wanted to ride his bike to school. We live on a busy road so we agreed on him riding from a park about a mile away. He’s 17 years old so of course did NOT want me with him. We agreed I’d meet him where the sidewalk curves to the high school. It’s … Continue reading Wil rode is bike to school!
Staying Open
It happened after an event in the high school gymnasium. I don’t remember the event, but the after-scene is a moving photograph vivid in my mind. Wil approached a group of male high school peers on the gymnasium floor. At his approach, the circle broke with fist bumps, hellos, and high-fives with Wil. Two boys … Continue reading Staying Open
Life Beyond Definitions
He has delayed speech but he’s not delayed speech. Some of our traits carry deep meaning, and others just are what they are – we give them little thought. Or maybe they are fun to play with, like changing our hair color. It is our choice in what meaning we give to our various traits. … Continue reading Life Beyond Definitions