A sticky, filmy, wiggly smudge snaked across my computer screen. I’m not a fan of snakes, but I looked at this one endearingly. Just a few days ago Wil was flipping through photos on my computer. They were photos of experiences at Camp Sunshine; the camp he’d be going to this very weekend. He smiled … Continue reading Celebrate Good Times, Come On!
Another Gear
I pulled up in the driveway at 7:45AM after coaching. Just as I was about to exit my car to go inside our home and check on Wil’s readiness for school, he ran outside and into the car! He was fully dressed, complete with his hoodie, backpack and even socks (which sometimes prove challenging for … Continue reading Another Gear
Heavy and Light
Wil loves riding his recumbent bike around our property. The challenge is I can’t fully trust he won’t go out to the road. And it’s a busy road. I was talking to fellow mother yesterday. Her 16-year-old son, who also has Ds, is in summer speech and occupational therapy with Wil. As much as her … Continue reading Heavy and Light
Steps to Independence
I walked Wil into his first day of camp, then I walked back to my car. I shut the car door and cried for 5 minutes straight. I couldn’t stop seeing Wil’s face in my mind. His big, wide eyes looking up at me above his mask. I knew that look. He was trying to … Continue reading Steps to Independence
The Same, but a Little Brighter
You know that “brillance” enhancement on your iPhone photos? How your picture is the same, but a little brighter? That’s how it is raising a child with Ds. There is a lot that is the same. So much that is the same. Then there are the experiences that take longer to emerge; I like to … Continue reading The Same, but a Little Brighter
Wil’s Growing Independence
Lately, I’ve been thinking a lot about Wil as a young adult. Will he live with Matt and myself? Will he live independently with help? Will he have his own apartment with a friend? Wil is a very social person; he loves to swim, golf and hang out with friends. I know he’ll want to … Continue reading Wil’s Growing Independence