Wil talks all the time. He talks to me, he talks to friends, he talks to himself. I wonder at the time, listening to him today, how one hesitant word was cause to drop everything and celebrate. His verbalization today was once a distant, fuzzy dream. Like reaching for a cloud that my hands couldn't … Continue reading I Wonder, Wonder, Wonder
Pinnacles
This blog isn’t about Wil, it’s about me in relation to Wil. And I guess all my blogs are really about that. Because I had no clue how to raise a child with Down syndrome. And I don’t think many of us do. There are parenting books, but how many of your typically-developing kids fit … Continue reading Pinnacles
Tree Wil and Glitter Christie
The past fall, I struggled with the thought of never truly being an empty nester. My thoughts were a twisted, tangled jumble of yarn – strands of prickly burlap wound tight around strands of brilliant, transparent glitter. The brilliant strands of glitter represent Wil’s near constant song. Nearly every event calls for a song -- … Continue reading Tree Wil and Glitter Christie
The Perspective of Time
Wil has grown so much in his 10th grade year, and I can’t thank Kristi Campbell, Hope Schook and Heidi Drake enough for that! For this fact, it gives me space to snicker when I read about a day like this: 10:05 Refused to work10:08 Turned it around10:25 Refused to work10:30 Turned it around1:50 Refused … Continue reading The Perspective of Time
Let Us Embrace Our Vulnerable Population
In embracing our vulnerable population we embrace our own vulnerabilities. We crave Love. Love is the base of all things. Love is survival. We crave, live and breathe for Love. In embracing individuals that we previously misconceived as having lesser value, we find in fact their value is greater than ours as theirs is the … Continue reading Let Us Embrace Our Vulnerable Population
HOW WE BEND
Today Wil and Manny went bowling. Both are teens with Down syndrome. Manny’s mom, Laura, and I share frequently about our plans, thoughts and concerns for the future. Thoughts about our boys as they age out of the school system; after friends have moved on to college, to jobs, to get married. How will our … Continue reading HOW WE BEND
Unsuspected Connections
Yesterday, checking out at the grocery store, the grocery clerk commented on the cupcakes I bought. I said the cupcakes were for my son’s classroom for his birthday. The grocery clerk asked how old my son was. I replied that he was my baby, and it was hard to believe he was already 16 years … Continue reading Unsuspected Connections
Deeper Than a Good Deed
One of my favorite parts about Special Olympics events is when I thank the volunteers for their time, and they say, “No, thank YOU! We are so very thankful for this opportunity.” And in further discussion you find they volunteered once as a “good deed” and now it’s 20 years later and they wouldn’t miss … Continue reading Deeper Than a Good Deed
A Dose of Happy
After coaching this AM, I pulled into our attached garage. Wil, hearing the garage door lift, opened the side door from our house into the garage. He stood there, with his short hair a fuzzy mess, navy blue donut pj bottoms, and one of his many Buddy Walk t-shirts. I responsively smiled at him through … Continue reading A Dose of Happy
The Dance
When Wil was born, I wondered on his differences. How would they separate him from making friends? How would his differences separate him from living a full life? What I didn’t know was Wil’s differences would become woven so deeply into our daily lives that they would be our norm. One example is Wil’s dancing. … Continue reading The Dance