Down Syndrome Gives Us Permission to Be Exactly Who We Are

Elizabeth looked over my shoulder as I typed into the blog,, “A whole page dedicated to Wil,” she said. “I’m sure he gives you lots of material!” <laughing and rolling her eyes>.
“Haha, you know he does! But that’s kind of the point. He lives out loud. It’s funny, as we get older, and supposedly smarter, we seem to close ourselves off to living out loud. We get set in our ways and our beliefs. Wil broke me of that, and thank goodness. I think everyone needs those wake-up calls in life to shake them out of their set ways. He shakes things up and makes me look at things in a new way almost every, single day. Do you remember how I called something ‘weird’ the other day? Then you corrected me and said I should use the word ‘different’ instead. I really appreciated that. You said what may be weird to me may not be weird to someone else. It was just their way of doing something that was different from mine. Well, that’s kind of the point with my blog. There is a lot of fear surrounding Down syndrome. Even though in a lot of ways Wil is the same, people fear what is different. And it’s not because it’s bad, it’s just because they don’t understand it. By writing these blogs, I hope to bring some understanding. And more than that, fully embracing Down syndrome. The way Wil lives is very freeing and invigorating. Something a lot of us adults could learn from. This blog is in big part for what Wil stands for. Think of the kids in school. They all love Wil because he doesn’t judge them. No matter who they are, he will readily give them a great big bear hug just because he loves them for who they are. Or how we all know when Wil eats a chocolate donut he says “mmmmmm” out loud with every single bite. It makes it so much more fun to have a donut with him. Or how he stopped in the headphone aisle at Target, put a pair of headphones on and danced to the music. He can make any kind of experience fun, no matter where we are. But as adults we get so used to things and so get bored with life. We get set in our ways and our beliefs, and life gets kind of dull. Wil never, ever gets bored. And he never, ever lets life get dull. If he can do that, then can’t we all do the same in our own way? Wil gives us permission to be free, to have fun, to be who we are in our essence. The irony is, many of us fear Down syndrome, when I think what we really fear is letting ourselves be exactly who we are.”

Published by Christie Taylor

Christie Taylor is the creator of the website,, and author of "Stories of Wil: Puberty Part 1" ( Christie believes that if we all had the opportunity to spend a day with our loved ones with Down syndrome, many of the stereotypes and stigmas would dissipate. Christie invites you, through her stories, to spend a day with Wil. The more the merrier!

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