Wil and I left the store and walked through the parking lot to our car. Wil stopped just short of our car, and kicked his legs out in front of him in quick succession. He began humming a tune, then planted his legs and wiggled his hips. His hum broke way to song and heContinue reading “Turn it Up, Down”
Tag Archives: special needs parenting
In Wil’s Words
Wil and I laid on our sectional couch just before bedtime. Our heads together, we made a right angle given that we are almost the same height from top to bottom. My boy is growing up. “Mom, we read ‘The Shoemaker.’” I smiled. It takes quiet moments like these for Wil to initiate a conversation. Continue reading “In Wil’s Words”
Typical Truths
“He will always be happy.” “God only gives special children to special people.” “Kids with Down syndrome are angels on earth.” Or the dreaded, “I’m sorry.” Words meant to heal. Words meant to help. Words meant to fill the gap of not knowing what else to say.I have experienced, however, these words don’t fit theContinue reading “Typical Truths”
Champs of the Day
Two weeks ago, I shared a story with you about our tubing adventure on Lake Lansing with friends Cheri, Randy and their son, CJ. Thanks to Cheri’s patience, Wil overcame his fears and very tentatively got on the tube with her. With much coaxing, Cheri convinced Wil to go for a very slow ride. Wil’sContinue reading “Champs of the Day”
Person First
Person-first language. That was one of the first terms I learned. Wil is not a Down syndrome boy. Wil is a boy with Down syndrome. I also learned where the word Down came from: Dr. John Langdon Down. Dr. Down wasn’t the first person to discover Down syndrome, but he was the first person to fully describeContinue reading “Person First”
WILingness 