A Little Can Mean a Lot

Yesterday I went to Wolf’s Westside Automotive Service for an oil change. I had been there the previous day to have my tire patched. When I came in for my tire, the front door was propped open, the garage bay doors rolled up, and a refreshing breeze flowed through the lobby.

Yesterday was just that much warmer, so the bay and front doors were closed; a unit air conditioner cooled the lobby.

The owner, Pete, came into the lobby from the garage, sat down across from me, and delivered an update on my car’s service. Our conversation transitioned from the car to fitness and then into a story about his friend who has an adult daughter with Down syndrome. Though I don’t know Pete beyond the walls of his garage, in his storytelling, I heard true understanding. To attain that, without a child of his own with Ds, requires an openness to understand.

His shared story, and openness, were especially timely and meaningful to me as I’ve recently experienced the challenge of closed minds at a new level. I admit I’m somewhat naive in this area; thankfully. My fighting skills are weak; again thankfully. This town has always embraced Wil. I’ve needed to advocate, yes, but advocation is a conversation when you advocate with open minds.

With Wil getting older and other certain circumstances, I have now experienced lack of understanding, and the unwillingness to understand, on a broader level.

It’s hard to explain this life because a little means a lot. How do I explain, that every time I drive in the car with Wil, and he belts out Luke Bryan lyrics with complete accuracy, the elation I feel? That every word he forms beams me back to stretched-out years patiently waiting and diligently working on forming his first words? I have a million such stories.

All I need is a little crack in the door of a mind to get through. And yet, I physically feel the air fall dead between myself and a mind that is closed. I find this disconnection rarely intentional, and not meant to be hurtful. It’s not lack of experience with a disability that is the issue, it’s the unwillingness to open a door to understanding. Even the slightest creak of a hinge is all I ask. But for reasons of their own, deep within, they don’t want to know. The door remains closed. I find ways to keep knocking.

But not yesterday. There I sat, in our small town, for an oil change of all things, and with the natural flow of conversation a story was shared with full understanding. There was no knocking, no prying, no trying. The air conditioning was working, but all I felt was a needed breath of fresh air.

A little can mean a lot.

Wil and his friend, Manny

A Colorful Morning

The previous weekend, a storm blew through town and we lost our power. When Wil woke up, as per usual, he wanted his hot sandwich. I explained to him that we lost power so it would have to be a cold sandwich. Then he realized he couldn’t watch his favorite television show. He was becoming upset as he realized all the things that power provided to us that he wouldn’t be able to use. Wil is very much an outdoor-loving kid, so I suggested we go for a walk in town after breakfast. (With the pandemic, we’d been on multiple walks down our country roads. I knew the suggestion of walking in town would be more enticing to him as it would provide fresh scenery.)

I put the wagon in the back of the car, then Elizabeth, Wil and I (Katherine was spending the night at my parent’s house) drove into town while Matt stayed at home getting the generator running. Wil is an active kid, but with low muscle tone he gets tired easily. The wagon is useful in that he can take breaks and we can all walk together for longer distances. However, at 112 pounds, he’s not so easy to pull around anymore!

When we arrived in town, I bought Wil a Gatorade at the gas station as a “special treat.” We unloaded the wagon and walked behind the gas station to the gravel trail that runs along the River Raisin. It was a beautiful, bright morning.  Multiple chipmunks scuttled in and out of the greenery along the trail, and though humidity hung in the air, the bugs were minimal.

At one point on the trail, when Wil was walking, we left the wagon behind as its noisy and bumpy on the gravel. On our return, the wagon in sight, Wil decided he was too tired to make it to the wagon. If he sat down, we knew it would be hard to get him back up again. Elizabeth ran over to Wil and whispered in his ear. “Wil, tell mom her hair is purple!” He ran over to me and yelled out, “Mom, your hair is purple!”

“Purple hair?” I patted my head. “How did that happen? Wil, come here.” I whispered in his ear, “Guess what? Elizabeth has orange toes.” He laughed and ran over to Elizabeth and yelled out, “Elizabeth, you have orange toes!”

We continued down the trail this way, with Wil running back and forth between Elizabeth and myself, sharing our colorful secrets about our arms, legs, noses, ears, toes and fingers. When we reached the wagon, Wil wanted to continue the game, so he walked on as I pulled the empty wagon. Elizabeth and I had to get creative with our colors – at one point I had chartreuse arms and she had a magenta nose.

Wil did hop in the wagon for the last climb up to the car. As I pulled the wagon up the hill, Wil occasionally called out the colors of our chameleon-like selves in-between sips of Gatorade. We made a final stop at Acorn Market for fresh blueberries and raspberries.

The power outage at home made way for a colorful morning out on the town.

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