“I swallowed a marble.” I was in the living room. Wil was sitting in his bedroom adjacent to the living room. Wil often talks to himself – many of us do. It helps us better process our thoughts, and it’s the same for Wil and for many people with Down syndrome. I quite like eavesdropping … Continue reading Whale Starts with W
Got Curiosity?
My Grandma used to wrap presents in newspaper. In the opening, my fingers would be covered in smeary black smudge, but as a kid who cared? My Grandma didn’t much care either, which is why she didn’t spend time buying pretty wrapping. What was important to her was the giving. Now I look back and … Continue reading Got Curiosity?
I Wonder, Wonder, Wonder
Wil talks all the time. He talks to me, he talks to friends, he talks to himself. I wonder at the time, listening to him today, how one hesitant word was cause to drop everything and celebrate. His verbalization today was once a distant, fuzzy dream. Like reaching for a cloud that my hands couldn't … Continue reading I Wonder, Wonder, Wonder
With a little help from my friends
Wil had a very hard morning. He would not get out of bed. Would not budge. Usually I tickle his feet. He laughs, sits up and says, “Hug Mom!” He loves high school so even if he’s tired he is typically happy to get up and go. This morning was a throw back from the … Continue reading With a little help from my friends
Blooming Naturally
Opening minds to acceptance need not be negative. My journey with Wil’s diagnosis is likened to a flower blossoming through a crack in the concrete, unfolding, stretching, growing, reaching, and opening fully to the sun. At first unbelievable, then freeing, and now a natural part of life. Disability is a natural part of the human … Continue reading Blooming Naturally
Let Us Embrace Our Vulnerable Population
In embracing our vulnerable population we embrace our own vulnerabilities. We crave Love. Love is the base of all things. Love is survival. We crave, live and breathe for Love. In embracing individuals that we previously misconceived as having lesser value, we find in fact their value is greater than ours as theirs is the … Continue reading Let Us Embrace Our Vulnerable Population
I AM NOT GRATEFUL
November is the month of gratitude, so I thought it timely to share this previously written post on why… I AM NOT GRATEFUL I was not grateful when I learned Wil had Down syndrome. I am not grateful my marriage was challenged by our differing timetables of acceptance. I am not grateful my relationships with … Continue reading I AM NOT GRATEFUL