You know that “brillance” enhancement on your iPhone photos? How your picture is the same, but a little brighter? That’s how it is raising a child with Ds. There is a lot that is the same. So much that is the same. Then there are the experiences that take longer to emerge; I like to … Continue reading The Same, but a Little Brighter
STORIES OF WIL: PUBERTY PART 1 is now available on AMAZON!!
It’s here!!! We are so excited to make this announcement! This work of love is live on Amazon in both paperback and ebook format. The purpose of writing Stories of Wil: Puberty Part 1 is to connect with families through relatable stories and raise awareness. If upon reading this work of love, you find a … Continue reading STORIES OF WIL: PUBERTY PART 1 is now available on AMAZON!!
In Sync
As Wil has gotten older, it’s clear he needs closer friends with Down syndrome. He has wonderful friends at school that love and support him fully. As the gap in abilities with his typical peers grows and social lives expand, Wil also needs to cultivate friendships with those whose abilities match his. Manny’s family lives … Continue reading In Sync
A Colorful Morning
The previous weekend, a storm blew through town and we lost our power. When Wil woke up, as per usual, he wanted his hot sandwich. I explained to him that we lost power so it would have to be a cold sandwich. Then he realized he couldn’t watch his favorite television show. He was becoming … Continue reading A Colorful Morning
Its Not Real…Until It Is
I would say this situation is hardest on Wil. He doesn’t understand as much as I’ve explained it. I’ve heard the response, “I don’t understand, either,” which I respect and appreciate. But Wil doesn’t understand what a virus is. We do know what a virus is, even not knowing all the details of this particular … Continue reading Its Not Real…Until It Is
Chicken Tender Caper
Last night I made “healthy” chicken tenders (soaked in almond milk, whole wheat bread crumbs, etc). I took the tenders out of the oven, hollered to Matt, Elizabeth and Wil, who were outside, dinner was ready then took Katherine to Crossfit. I returned to Elizabeth telling me Wil ate almost 2 pounds of the tenders, … Continue reading Chicken Tender Caper
Navigating Methods of Plane Sailing
“The gate is closing in four minutes, ma’am.” An airline representative said to me as I sat on the floor with Wil. “Yes, thank you. I just can’t get him up. I’m trying.” Katherine was standing by our bags and Elizabeth and I tried to lift Wil up into a wheelchair to roll him onto … Continue reading Navigating Methods of Plane Sailing