Wil rode the school bus today. In this house we take no such statements for granted. In middle school, Wil riding the bus proved unsuccessful. He was already having a hard time transitioning to a new school with new educators and hormones were in full effect. The middle school years are challenging; then add in … Continue reading Wil Rode the School Bus Today!
Blooming Naturally
Opening minds to acceptance need not be negative. My journey with Wil’s diagnosis is likened to a flower blossoming through a crack in the concrete, unfolding, stretching, growing, reaching, and opening fully to the sun. At first unbelievable, then freeing, and now a natural part of life. Disability is a natural part of the human … Continue reading Blooming Naturally
Change Doesn’t Happen Until We Have Reason to Care
He’s a 16-year-old kid. He wants to be a 16-year-old kid the way he is, just like any 16-year-old kid wants to do things the way they do. Why should a kid with prosthetic legs be an inspiration when he plays baseball? He just wants to play baseball, and that’s the way he does it. … Continue reading Change Doesn’t Happen Until We Have Reason to Care
Not A Chromosome Too Many For Being His Best
Someone once said to me about Wil, “ but don’t you want him to be the best he can be?” This was in relation to a claim certain supplements could help take some of his Down syndrome features away. Of course, I want Wil to be the best he can be. But what I don’t … Continue reading Not A Chromosome Too Many For Being His Best
My Writing Summed Up in 7 Steps
If I were to sum up my writing surrounding Wil in 7 steps it would be: Wil wants and deserves to be treated as you’d treat anyone. As the individual he is. But, 47 chromosomes has an impact on Wil. To respect him for who he is, you cannot have an idealized view of what … Continue reading My Writing Summed Up in 7 Steps
Wild Cards & Wild Hairs
Picture day was today. Last night Wil took a shower in preparation, and spent extra time choosing a shampoo. I heard him talking to himself as he smelled each one. “Ewww! Too strong. Hmmm, this is old. Mmmm, smells good.” With his sisters gone to college, Wil can safely use what they’ve left behind without … Continue reading Wild Cards & Wild Hairs
Time to Share the Mic: Authenticating the Voice of Disability in Film
Should people without disabilties play parts in film of people with disabilties? There have been some impressive performances of such cases. But then I thought, if Wil were an actor, would he be hired to play any part but of the person with Down syndrome? That would be summed up in two letters: NO. And … Continue reading Time to Share the Mic: Authenticating the Voice of Disability in Film
Appreciation of the Destination
Matt and I went out on the paddle boards and took Wil in the kayak. Wil was very proficient at paddling backwards, but didn’t quite catch on to paddling forward. Wil found himself deep in the lily pads— he got frustrated, so Matt went back to get a bungee out of the truck, and bungeed … Continue reading Appreciation of the Destination
On Teenage Terms
Wil was being a full-on teenager and I was being a full-on frustrated parent of a teenager. I had prepared him for this orthodontist appointment for over a week. And he likes the orthodontist. He likes the orthodontic hygienists. He likes picking out new colored bands for his braces. The issue was not the orthodontist. … Continue reading On Teenage Terms
To Be or Not To Be
Individuals with disabilities are not more or less special — they are not put on this planet to teach us. All of us are born of the same place; all of us are born of our own ways. All of us are here just as we all are—meant to live and breathe and express our … Continue reading To Be or Not To Be