I was just kinda wondering about a few things. Like, why do we get burned out? Why on some days do I love my son’s stuttering. It’s really not even stuttering, it’s halting, starting a word, bringing it back in and reforming it. Then it all tumbles out until the next words get backed up … Continue reading Creating Space & Saving Spoons
What Silly Socks Don’t Tell You
At school yesterday, we wore our silly socks for World Down Syndrome Day. Today is actually WDSD, but since there isn’t school on Saturday, we celebrated on Friday. As the other teacher assistants and I walked down the hall to pick up our students from the bus, we talked about our socks. I said that, … Continue reading What Silly Socks Don’t Tell You
Independence Takes a Village with Dependent Children
I have recently gotten back in the pool (after a year 😅) thanks to our friend, Dawn, taking great care of Wil after school and honing in on his life skills learning. While I swam Monday, Dawn’s husband came over to have a guitar jam session with Wil 🎸 When you have a dependent child, … Continue reading Independence Takes a Village with Dependent Children
Turning the Tide: A Story of Growth and Inclusion
Growing up, Wil has loved boat rides with his Grandma and Grandpa. So when his sisters were invited on an impromptu trip around the lake with some of the neighbor's kids, they jumped on — and Wil stayed back with his grandparents. My dad noticed a shift in Wil’s demeanor. He didn’t say anything, but … Continue reading Turning the Tide: A Story of Growth and Inclusion
Down Right Perfect
I remember one day wearing a “Down Right Perfect” t-shirt as I marched up to the high school doors to collect Wil after school hours because he had run from getting on the bus. He booked it up the steps to the second floor and hid. Once he was found, Mr. Walsh walked him down … Continue reading Down Right Perfect
Paradoxical Path
A singular new word Wil calmly adds to his vocabulary, in a such a way that only I — or his closest educators — would hear stands out like a stacatto flashing me back in time to a movie reel loop when he was 5 or 7 or 10, working a skill on a repeat … Continue reading Paradoxical Path
Wil is graduating; this is a hard one. Raising Wil I’ve gone through what I think of as “3 acceptances” so far: Acceptance of Ds Acceptance of new behaviors of puberty. (That was a tough one!! That truly took a village!) Acceptance of transitioning out of high school. Wil is ready to graduate, though; he’s … Continue reading
Wepa!
Wil has a very set — and happy — routine in the morning. His alarm goes off, I go to his room, sing him a song and give him a hug (definitely a daily stop and smell the roses moment for me — making time for songs and hugs are Wil’s priorities and remind me … Continue reading Wepa!
It’s a Wonder
I think all of us look at our seniors in wonder. Because when they are born, that’s all we can do; we can never quite know how the future will unfold. I still wonder as I look back on how he — and we all — got here. I cannot fully express my gratitude for … Continue reading It’s a Wonder
Light 💡 Ranch
Not so long ago, if anyone gave Wil choices he’d pick the last choice offered. This morning I asked him, “What dipping sauce do you want? Ranch, mustard, ketchup or honey mustard?” “H — Ranch.” Wil corrected his auto-response for what he wanted. Life is full of tiny miracles embedded within everyday occurrences. Our kids … Continue reading Light 💡 Ranch