Just 2 years ago during graduation party time I needed an eagle eye on Wil. At one party he fled the party and would not leave the front porch. At another he ran to a side street and sat in the middle of it. Yesterday, at each grad party he hung with his buddies. And … Continue reading Steps in Time
Patience v Desire to Understand
I’m not a patient person. But I’ve been called patient a lot since raising Wil. And I started to believe I grew in my patience. It’s possible I did. Last weekend Wil got stuck, and we had a very important wedding to get to. As the clock ticked I grew very frustrated. I wasn’t feeling … Continue reading Patience v Desire to Understand
Inclusion: Reason to Care
I’m no born-natural. I’m not made to raise a child with Down syndrome. But here I am. And working as a paraprofessional, no less. I have a lot to offer, we all do. But I have a lot to learn; that’s exactly why am I where I am. Not because I was born with a … Continue reading Inclusion: Reason to Care
I Wonder, Wonder, Wonder
Wil talks all the time. He talks to me, he talks to friends, he talks to himself. I wonder at the time, listening to him today, how one hesitant word was cause to drop everything and celebrate. His verbalization today was once a distant, fuzzy dream. Like reaching for a cloud that my hands couldn't … Continue reading I Wonder, Wonder, Wonder
Rise & Shine
Last night Wil’s music therapist recapped his session with me. She said, “I know how hard positioning his fingers and his wrist is for him . I can see his restraint from giving up. He has a lot of focus to keep going. That shows me he has been well supported.” That last sentence 😭 … Continue reading Rise & Shine
Disability Invisibility Goggles
We historically do not like people who think differently than we do. We want things to work out the way we want them to and we surround ourselves the best way we can so things work out the way we want them to. When things don’t work out the way we want them to we … Continue reading Disability Invisibility Goggles
Extra Chromosome = Extra Life
Yesterday Wil and I were driving to get his hair cut. Wil always takes my phone, searches what he wants to play on Amazon music. If he diverges from Luke Bryan he’ll say to himself, “how to spell Dierks Bentley” and type it out using phonics. Sometimes this works, and sometimes it leads to frustration … Continue reading Extra Chromosome = Extra Life
An Ornamental Moment
Wil loves putting ornaments on the Christmas tree. Using his fine motor skills has always been a challenge for him; especially pinching. As you can imagine, placing ornaments with loops on top gets tiresome quickly for Wil — but Wil always finds a way. When his pinching fingers are worn out, he puts the ornament … Continue reading An Ornamental Moment
With a little help from my friends
Wil had a very hard morning. He would not get out of bed. Would not budge. Usually I tickle his feet. He laughs, sits up and says, “Hug Mom!” He loves high school so even if he’s tired he is typically happy to get up and go. This morning was a throw back from the … Continue reading With a little help from my friends
Wil Rode the School Bus Today!
Wil rode the school bus today. In this house we take no such statements for granted. In middle school, Wil riding the bus proved unsuccessful. He was already having a hard time transitioning to a new school with new educators and hormones were in full effect. The middle school years are challenging; then add in … Continue reading Wil Rode the School Bus Today!