Submerged to Surfaced

Wil totally worked the system last night… Over the summer, Wil greatly anticipated celebrating at his Connect friends’ senior grad parties. However, once at the event, he’d soon become overwhelmed with the activity and number of people and flee. As many of the grads live in the country, I’d turn my back in conversation, onlyContinue reading “Submerged to Surfaced”

A Good Morning!

Wil set the alarm on his iPad last night for school (I showed him how after asking the twins if they had an old alarm clock Wil could use. Elizabeth said, “Mom, just use his iPad” 🙄). On mornings I work, Katherine or Elizabeth typically wake Wil. He is very independent now, and it’s gettingContinue reading “A Good Morning!”

Proudly Hail’d

At last Friday’s homecoming game, Wil and five choir companions formed a half circle in front of a microphone. The spectators, packing the stands, rose with hats and hands placed over hearts. The perfectly uniformed Manchester marching band spanned the field behind the semi-circle of singers and began their patriotic play. I held my breath.Continue reading “Proudly Hail’d”


Most mornings these days Wil wakes up happy and cooperative; he’s nearly sixteen years old now. We have a few morning struggles but nothing like his earlier years. He enjoys school, seeing his friends, and his independence. We talk about what day of the week it is, the month and the season. Wil keeps closeContinue reading “Out-Turn”

Blending Scenes

“The Buddy Walk is only one mile walk. I think you can handle it,” I joked. “And really, with so many people with Down syndrome, we don’t move fast!” When The Peanut Butter Falcon was available for streaming, I didn’t want to watch it on my own. The viewing experience would be fuller with friendsContinue reading “Blending Scenes”


Wil double-stepped down the broad concrete steps. He paused. Then he threw both arms back, hinged forward at the waist, and propelled himself over the last step. Mid-air he hollered, “Jump!” He landed flat-footed and straight-legged. Dang, when will he ever bend his knees? “Mom, jump!” He yelled. I exaggeratedly swung my left arm back,Continue reading “Unwrapped”

A Dose of Happy

After coaching this AM, I pulled into our attached garage. Wil, hearing the garage door lift, opened the side door from our house into the garage. He stood there, with his short hair a fuzzy mess, navy blue donut pj bottoms, and one of his many Buddy Walk t-shirts. I responsively smiled at him throughContinue reading “A Dose of Happy”

Word Up!

When Wil tries to figure something out, he has a back-and-forth conversation with himself: “Wear the grey shirt? Yes, yes, the grey shirt.” This will go on for his hat and shorts, too; and with most any task that requires decision-making. He’s been having these conversations for about 5 years now. At first, I wasContinue reading “Word Up!”

Mixed Medley

I dropped Wil off on the second morning of his first all-day camp. He talked about camp for weeks; water balloon tosses, scavenger hunts, a trip to the beach – and parent-free. There were no tears at drop-off; Wil and I were both ready for this leap in independence. This summer has been the MomContinue reading “Mixed Medley”

Yesterday Was a When

Yesterday, Wil and I had lunch and a conversation on the back porch. One night, I sat on the edge of Wil’s bed. It was the school year of 2016. In the quiet before sleep, Wil was most apt to share his day. I always started with questions about his friends and lunch; they wereContinue reading “Yesterday Was a When”