Blending Scenes

“The Buddy Walk is only one mile walk. I think you can handle it,” I joked. “And really, with so many people with Down syndrome, we don’t move fast!” When The Peanut Butter Falcon was available for streaming, I didn’t want to watch it on my own. The viewing experience would be fuller with friendsContinue reading “Blending Scenes”


Wil double-stepped down the broad concrete steps. He paused. Then he threw both arms back, hinged forward at the waist, and propelled himself over the last step. Mid-air he hollered, “Jump!” He landed flat-footed and straight-legged. Dang, when will he ever bend his knees? “Mom, jump!” He yelled. I exaggeratedly swung my left arm back,Continue reading “Unwrapped”

A Dose of Happy

After coaching this AM, I pulled into our attached garage. Wil, hearing the garage door lift, opened the side door from our house into the garage. He stood there, with his short hair a fuzzy mess, navy blue donut pj bottoms, and one of his many Buddy Walk t-shirts. I responsively smiled at him throughContinue reading “A Dose of Happy”

Word Up!

When Wil tries to figure something out, he has a back-and-forth conversation with himself: “Wear the grey shirt? Yes, yes, the grey shirt.” This will go on for his hat and shorts, too; and with most any task that requires decision-making. He’s been having these conversations for about 5 years now. At first, I wasContinue reading “Word Up!”

Mixed Medley

I dropped Wil off on the second morning of his first all-day camp. He talked about camp for weeks; water balloon tosses, scavenger hunts, a trip to the beach – and parent-free. There were no tears at drop-off; Wil and I were both ready for this leap in independence. This summer has been the MomContinue reading “Mixed Medley”

Yesterday Was a When

Yesterday, Wil and I had lunch and a conversation on the back porch. One night, I sat on the edge of Wil’s bed. It was the school year of 2016. In the quiet before sleep, Wil was most apt to share his day. I always started with questions about his friends and lunch; they wereContinue reading “Yesterday Was a When”

It’s in the Experience

The teenaged lifeguard; tall, lean and curly-haired, stood on the edge of the wave pool blowing his whistle — at me. I saw her face in his; though she was his senior by at least 20 years, with straight brown hair and a brisk uniform. She was resolute to get Wil’s boarding pass — fromContinue reading “It’s in the Experience”

A Little Can Mean a Lot

Yesterday I went to Wolf’s Westside Automotive Service for an oil change. I had been there the previous day to have my tire patched. When I came in for my tire, the front door was propped open, the garage bay doors rolled up, and a refreshing breeze flowed through the lobby. Yesterday was just thatContinue reading “A Little Can Mean a Lot”

Heavy and Light

Wil loves riding his recumbent bike around our property. The challenge is I can’t fully trust he won’t go out to the road. And it’s a busy road. I was talking to fellow mother yesterday. Her 16-year-old son, who also has Ds, is in summer speech and occupational therapy with Wil. As much as herContinue reading “Heavy and Light”

Just Make Him Do It

One of the most common things I hear (and what many of my friends who have children w disabilities hear) is, “well, just make him do it.” I literally feel a huge distance grow between us with this seeming logic. And yet, it’s a very difficult distance to close as there is no logical explanation.Continue reading “Just Make Him Do It”