A singular new word Wil calmly adds to his vocabulary, in a such a way that only I — or his closest educators — would hear stands out like a stacatto flashing me back in time to a movie reel loop when he was 5 or 7 or 10, working a skill on a repeat … Continue reading Paradoxical Path
Wil is graduating; this is a hard one. Raising Wil I’ve gone through what I think of as “3 acceptances” so far: Acceptance of Ds Acceptance of new behaviors of puberty. (That was a tough one!! That truly took a village!) Acceptance of transitioning out of high school. Wil is ready to graduate, though; he’s … Continue reading
Wepa!
Wil has a very set — and happy — routine in the morning. His alarm goes off, I go to his room, sing him a song and give him a hug (definitely a daily stop and smell the roses moment for me — making time for songs and hugs are Wil’s priorities and remind me … Continue reading Wepa!
It’s a Wonder
I think all of us look at our seniors in wonder. Because when they are born, that’s all we can do; we can never quite know how the future will unfold. I still wonder as I look back on how he — and we all — got here. I cannot fully express my gratitude for … Continue reading It’s a Wonder
Leaders in Life
Our Human Services leader is telling us to be weak. To be devasted by a diagnosis. To feel damaged because our children are neurodiverse and may not pay taxes. I was devastated but I CHOSE to RISE! I CHOSE to love my child for who they were and to find others that gave me strength … Continue reading Leaders in Life
Lightweight Powerhouse
This morning I lifted arms, and was in between weight choices — one was a little too heavy and one a little too light. I chose the lighter weight today. I really focused on contracting my muscle and slowing down. Veins and muscles popped with the lighter weight as I was super focused on form. … Continue reading Lightweight Powerhouse
Light 💡 Ranch
Not so long ago, if anyone gave Wil choices he’d pick the last choice offered. This morning I asked him, “What dipping sauce do you want? Ranch, mustard, ketchup or honey mustard?” “H — Ranch.” Wil corrected his auto-response for what he wanted. Life is full of tiny miracles embedded within everyday occurrences. Our kids … Continue reading Light 💡 Ranch
Random Moments
https://videopress.com/v/nPdv2ipU?resizeToParent=true&cover=true&preloadContent=metadata&useAverageColor=true When Wil was diagnosed with Down syndrome, the nurse could have not explained through my tears, “Your norm will be a compilation of random events like your son interrupting you doing homework saying, “Mom look at this!” About some Blues Clues song he randomly discovered and got super excited about. Just as how I, … Continue reading Random Moments
Wil rode is bike to school!
https://videopress.com/v/hezs5Vyj?resizeToParent=true&cover=true&preloadContent=metadata&useAverageColor=true Wil wanted to ride his bike to school. We live on a busy road so we agreed on him riding from a park about a mile away. He’s 17 years old so of course did NOT want me with him. We agreed I’d meet him where the sidewalk curves to the high school. It’s … Continue reading Wil rode is bike to school!
Age is Just All Numbers
Wil and I decorated the Christmas tree. It’s the first time we’ve done it just the two of us. Usually the twins are here so he’ll hang a few ornaments, but then move on to singing or other activities around us. As Wil was home sick, and we needed low-key activities to stave off boredom, … Continue reading Age is Just All Numbers