DOWN SYNDROME AWARENESS MONTH – Day 22

silly-bed-timeDOWN SYNDROME AWARENESS MONTH – Day 22
You will encounter people who do not get it. Who are blocked and can not, or will not, understand. They may be strangers, or people who should “know better.” They may be someone very close to you. This is an especially tough reality to face. It is difficult not to let this get you down. Somedays, it will. And that’s ok.
Because at the end of the day, when all has grown quiet, and the hurts and bumps of the day have been stripped away to just you and your child, you remember what you are fighting for. The deep, down core of it. This fight was never about them anyway. And that is something that can never be defeated.

DOWN SYNDROME AWARENESS MONTH – Day 20

birthday-hamburger-age-6DOWN SYNDROME AWARENESS MONTH – Day 20
I do not seek a cure for Down syndrome. If we are to find a cure, let it be for ailments associated with Down syndrome. Such as heart issues, Leukemia and early onset of Alzheimers. Down syndrome is not an illness. Down syndrome is a part of a whole person who brings special gifts to this world, as we all do. We are all here as perfectly as intended. That calls for a celebration, not a cure!